Poster (Scientific congresses and symposiums)
Poster "Cooperation in the Field of Rare Diseases: A Social Science Perspective"
Duysens, Fanny
20189th European Conference on Rare Diseases & Orphan Products
 

Files


Full Text
Poster_ECRD2018_Duysens Fanny_FULL.pdf
Author preprint (568.53 kB)
Download

All documents in ORBi are protected by a user license.

Send to



Details



Keywords :
Rare Diseases; Cooperation; Social Sciences
Abstract :
[en] As unanimously claimed within the rare disease community, cooperation between all stakeholders is a necessity in order to tackle these diseases and improve the difficult situations and experiences faced by patients and their relatives. Health professionals, public health authorities, scientists, pharmaceutical firms, or obviously patients and relatives’ associations, have an active part to play in the collective projects that are currently being developed around Europe. But putting cooperation into practice does not always go unhindered. Drawing on a research in social & political sciences, this poster analyses the drivers and effects of cooperation in the field of rare diseases. After the presentation of the research background and methodology, the poster highlights some significant findings and contributions of a social science perspective for the rare disease community. It is an original project especially designed for the 9th European Conference on Rare Diseases & Orphan Products - Theme 9: Open Topic.
Disciplines :
Anthropology
Sociology & social sciences
Author, co-author :
Duysens, Fanny ;  Université de Liège - ULiège > Département de science politique > Anal. et éval. des politiques publ.-Méthod. de sc. politique
Language :
English
Title :
Poster "Cooperation in the Field of Rare Diseases: A Social Science Perspective"
Publication date :
10 May 2018
Event name :
9th European Conference on Rare Diseases & Orphan Products
Event organizer :
Rare Diseases Europe (EURORDIS)
Event place :
Vienne, Austria
Event date :
Du 10 au 12 mai 2018
Audience :
International
Commentary :
The poster has been selected as a runner-up of the poster display by the dedicated committee of the 9th European Conference on Rare Diseases & Orphan Products.
Available on ORBi :
since 14 May 2018

Statistics


Number of views
80 (9 by ULiège)
Number of downloads
33 (4 by ULiège)

Bibliography


Similar publications



Contact ORBi