[en] The objective was to determine the interest and psychometric properties of a new QOL self-assessment questionnaire suitable for children 8–12 years old measuring alpha, beta and gamma changes: the ‘‘Inventaire Syste´mique de Qualite´ de vie pour Enfants’’ (ISQV-E ). This was a cross-sectional validation study. 288 children have completed the ISQV-E. Other tools were used: The ‘‘Autoquestionnaire de Qualite´ de Vie Enfants Image´’’ (AUQUEI), the State-Trait Anxiety Inventory for Children (STAIC), the Children’s Depression Inventory (CDI). The internal consistency of the four scores of the ISQV-E (state, goal, rank and gap) is satisfactory. All scores have their own specificity. The data show the convergent validity, sensitivity and applicability of the ISQV-E. On the other hand, no satisfactory factorial structure was found although a multidimensional theoretical perspective was applied. The feasibility of the ISQV-E seems clearly demonstrated and the value of this new tool seems evident in contexts of physical, psychological or social problems. The validation study was promising but certain points such as test–retest reliability remain to be studied.
Disciplines :
Pediatrics Treatment & clinical psychology
Author, co-author :
Etienne, Anne-Marie ; Université de Liège - ULiège > Département de personne et société > Psychologie de la santé
Dupuis, Gilles; UQAM
Spitz, Elisabeth; Université Paul Verlaine de Metz
Lemétayer, Fabienne; Université Paul Verlaine de Metz
Missotten, Pierre ; Centre Hospitalier Régionale de la Citadelle (Liège) - CHR CITADELLE > Service d'hémato-oncologie pédiatrique
Language :
English
Title :
The Gap Concept as a Quality of Life Measure: Validation Study of the Child Quality of Life Systemic Inventory
Alternative titles :
[fr] Le concept d'écart comme mesure de la qualité de vie: étude de validation de l'Inventaire Systémique de Qualité de Vie
Publication date :
January 2011
Journal title :
Social Indicators Research
ISSN :
0303-8300
eISSN :
1573-0921
Publisher :
Springer Science & Business Media B.V., Dordrecht, Netherlands
Allison, P. J., Locker, D., & Feine, J. S. (1997). Quality of life: A dynamic construct. Social Science and Medicine, 45(2), 221-230.
Annett, R. D., Bender, B. G., Lapidus, J., DuHamel, T. R., & Lincoln, A. (2001). Predicting children's quality of life in an asthma clinical trial: What do children's report tell us? Journal of Pediatrics, 139(6), 854-861.
Ashby, W. R. (1956). An introduction to cybernetics. London: Methuens (1979 Edition).
Baars, R. M., Atherton, C. I., Koopman, H. M., Bullinger, M., & Power, M. (2005). The European DISABKIDS project: Development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health and Quality of Life Outcomes, 3, 70.
Bertalanffy, L. (1973). Théorie Générale des Systèmes. Paris: Dunod.
Blanchon, Y. C. (1997). Editorial: La qualité de vie de l'enfant est-elle mesurable? Neuropsychiatrie Enfance et Adolescence, 45(3), 99-100.
Bruil, J. (1999). Development of a quality of life instrument for children with a chronic illness. Doctoral thesis. University of Leiden.
Bullinger, M., & Ravens-Sieberer, U. (1995). Evaluation de qualité de vie des enfants: Revue de littérature. Revue Européenne de Psychologie Appliquée, 45(4), 255-256.
Calaminus, G., Weinspach, S., Teske, C., & Göbel, U. (2000). Quality of life in children and adolescents with cancer. First results of an evaluation of 49 patients with the PEDQOL questionnaire. Klinische Pädiatrie, 212(4), 211-215.
Calman, K. C. (1984). Quality of life in cancer patients-an hypothesis. Journal of Medical Ethics, 10, 124-127.
Connolly, M. A., & Johnson, J. A. (1999). Measuring quality of live in paediatric patients. Pharmacoeconomics, 16(6), 605-625.
Czyzewski, D. I., Mariotto, M. J., Bartholomew, L. K., LeCompte, S. H., & Sockrider, M. M. (1994). Measurement of quality of well being in a child and adolescent cystic fibrosis population. Medical Care, 32, 965-972.
Davis, E., Waters, E., Mackinnon, A., Reddihough, D., Graham, H. K., Mehmet-Radji, O., et al. (2006). Paediatric quality of life instruments: A review of the impact of the conceptual framework on outcomes. Developmental Medicine and Child Neurology, 48(4), 311-318.
De Maso, D. R., Lauretti, A., Spieth, L., van Der Feen, J. R., Jay, K. S., Gauvreau, K., et al. (2004). Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators. American Journal of Cardiology, 93, 582-587.
Dupuis, G., Perrault, J., Lambany, M.-C., Kennedy, E., & David, P. (1989). A new tool to assess quality of life: The quality of life systemic inventory. Quality of Life and Cardiovascular Care, 5, 36-45.
Dupuis, G., Taillefer, M.-C., Etienne, A.-M., Fontaine, O., Boivin, S., & Von Turk, A. (2000). Measurement of quality of life in cardiac rehabilitation. In J. Jobin, F. Maltais, P. LeBlanc, C. Simard, & H. Kinetics (Eds.), Advances in cardiopulmonary rehabilitation (pp. 247-273). Champaign, IL: Human Kinetics.
Duquette, R., Dupuis, G., & Perrault, J. (1994). A new approach for quality of life assessment in cardiac patients: Rationale and validation of the quality of life systemic inventory. The Canadian Journal of Cardiology, 10(1), 106-112.
Eiser, C. (1997). Children's quality of life measures. Archives of Disease in Childhood, 77(4), 350-354.
Eiser, C., & Jenney, M. (2007). Measuring quality of life. Archives of Disease in Childhood, 92, 348-350.
Eiser, C., & Morse, R. (2001a). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84, 205-211.
Eiser, C., & Morse, R. (2001b). Can parents rate their child's health-related quality of life? Results of a systematic review. Quality of Life Research, 10, 347-357.
Eiser, C., & Morse, R. (2001c). The measurement of quality of life in children: Past and future perspectives. Journal of Developmental and Behavioral Pediatrics, 22(4), 248-256.
Eiser, C., Cotter, I., Oades, P., Seamark, D., & Smith, R. (1999). Health-related quality of life measures for children. International Journal of Cancer, 12(Suppl), 87-90.
Eiser, C., Vance, Y. H., & Seamark, D. (2000). The development of a theoretically generic measure of quality of life for children aged 6-12 years: A preliminary report. Child: Care, Health and Development, 26(6), 445-456.
Flapper, B. C., Koopman, H. M., Ten, N. C., & van-der Schans, C. P. (2006). Psychometric properties of the TACQOL-asthma, a disease-specific measure of health related quality-of-life for children with asthma and their parents. Chronic Respiratory Disease, 3(2), 65-72.
Fluchel, M., Horsman, J. R., Furlong, W., Castillo, L., Alfonz, Y., & Barr, R. D. (2008). Self and proxy reported health status and health-related quality of life in survivors of childhood cancer in Uruguay. Pediatric Blood & Cancer, 50, 838-843.
Gayral-Taminh, M., Bravi, C., Depond, M., Pourre, F., Maffre, T., Raynaud, J. P., et al. (2005a). Auto-évaluation de la qualité de vie d'enfants de 6 à 12 ans: Analyse du concept et élaboration d'un outil prototype. Santé Publique, 17(1), 35-45.
Gayral-Taminh, M., Matsuda, T., Bourdet-Loubère, S., Lauwers-Cances, V., Raynaud, J. P., & Grandjean, H. (2005b). Auto-évaluation de la qualité de vie d'enfants de 6 à 12 ans: Construction et premières étapes de validation du KidlQol, outil générique présenté sur ordinateur. Santé Publique, 17(2), 167-177.
Georges, G., & Vera, L. (1999). La timidité chez l'enfant et l'adolescent. Paris: Dunod.
Golembiewski, R., Billingsley, K., & Yeager, S. (1976). Measuring change and persistence in human affairs: Types of change generated by OD designs. The Journal of Applied Behavioral Science, 12(2), 133-157.
Harding, L. (2001). Children's quality of life assessments: A review of generic and health related quality of life measures completed by children and adolescents. Clinical Psychology and Psychotherapy, 8, 79-96.
Herdman, M., Rajmil, L., Ravens-Sieberer, U., Bullinger, M., Power, M., & Alonso, J. (2002). Expert consensus in the development of a European health-related quality of life measure for children and adolescents: A Delphi study. Acta Paediatrica, 91, 1385-1390.
Kovacs, M., & Beck, A. T. (1977). An empirical clinical approach towards definition of childhood depression. In J. G. Sculterbrandt & A. Raskin (Eds.), Depression in childhood: Diagnosis, treatment and conceptual models (pp. 1-25). New York: Raven Press.
Levi, R., & Drotar, D. (1998). Critical issues and needs in health quality of life assessment of children and adolescents with chronic health conditions. In D. Drotar (Ed.), Measuring health-related quality of life in children and adolescents (pp. 3-24). London: Lawrence Erlbaum.
Mack, C., & Morr, L. (1982). Versions françaises d'échelles d'évaluation de la dépression: Les échelles CDI et ISC de Maria Kovacs. Neuropsychiatrie de l'Enfance, 30(10-11), 627-652.
Maes, S., & Bruil, J. (1995). Assessing quality of life of children with a chronic illness. In J. Rodriguez-Marin (Ed.), Health psychology and quality of life research. Proceedings of the 8th annual conference of the European health psychology society, Vol. II. (pp. 637-652). University of Alicante: Spain.
Manificat, S., & Dazord, A. (1997). Evaluation de la qualité de vie de l'enfant: Validation d'un questionnaire, premiers résultats. Neuropsychiatrie Enfance et Adolescence, 45(3), 106-114.
Manificat, S., Dazord, A., Cochat, P., & Nicolas, J. (1997). Evaluation de la qualité de vie en pédiatrie: Comment recueillir le point de vue de l'enfant. Archives Pédiatrie, 4(12), 1238-1246.
Matza, L. S., Swensen, A. R., Flood, E. M., Secnik, K., & Leidy, N. K. (2004). Assessment of health related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value in Health, 7(1), 79-92.
Michalos, A. C. (1985). Multiple discrepancies theory. Social Indicators Research, 16(4), 347-417.
Missotten, P., Etienne, A.-M., & Dupuis, G. (2007). La qualité de vie infantile: état actuel des connaissances. Revue Francophone de Clinique Comportementale et Cognitive, 12(4), 16-27.
Nathan, P. C., Furlong, W., & Barr, R. D. (2004). Challenges to the measurement of health-related quality of life in children receiving cancer therapy. Pediatric Blood & Cancer, 43(3), 215-223.
Padua, L., Aprile, I., Cavallaro, T., Commodari, I., La Torre, G., Pareyson, D., Quattrone, A., Rizzuto, N., Vita, G., Tonali, P., & Schenone, A. for the Italian CMT QoL Study Group (2006). Variables influencing quality of life and disability in Charcot Marie Tooth (CMT) patients: Italian multicentre study. Neurological Sciences, 27, 417-423.
Powers, W. T. (1973). Behavior: The control of perception. Chicago: Aldine.
Raat, H., Mohangoo, A. D., & Grootenhuis, M. A. (2006). Pediatric health-related quality of life questionnaires in clinical trials. Current opinion in Allergy and Clinical Immunology, 6(3), 180-185.
Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., et al. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37-45.
Ravens-Sieberer, U., Erhart, M., Wille, N., Wetzel, R., Nickel, J., & Bullinger, M. (2006). Generic health-related quality of life assessment in children and adolescents: Methodological considerations. Pharmacoeconomics, 24(12), 1199-1220.
Ravens-Sieberer, U., Auquier, P., Erhart, M., Gosch, A., Rajmil, L., Bruil, J., et al. (2007). The KIDSCREEN-27 quality of life measure for children and adolescents: Psychometric results from a cross-cultural survey in 13 European countries. Quality of Life Research, 16(8), 1347-1356.
Rebok, G., Riley, A., Forrest, C., Green, B., Robertson, J., & Tambor, E. (2001). Elementary schoolaged children'reports of their health: A cognitive interviewing study. Quality of Life Research, 10(1), 59-70.
Rodary, C. (2000). Méthodologie d'étude de la qualité de vie chez l'enfant en recherche clinique. Archives de Pédiatrie, 7(suppl. 2), 230s-232s.
Schmidt, L. J., Garratt, A. M., & Fitzpatrick, R. (2002). Child/parent-assessed population health outcome measures: A structured review. Child: Care, Health and Development, 28(3), 227-237.
Siméoni, M. C., Auquier, P., Delarozière, J. C., & Béresniak, A. (1999). Evaluation de la qualité de vie chez l'enfant et l'adolescent. La Presse Médicale, 28(19), 1033-1039.
Speyer, E., Herbinet, A., Vuillemin, A., Chastagner, P., & Briançon, S. (2009). Agreement between children with cancer and their parents in reporting the child's health-related quality of life during a stay at the hospital and at home. Child: Care, Health and Development, 35(4), 489-495.
Spielberger, C. D., Edwards, C. D., Lushene, R. E., Montuori, J., & Platzek, D. (1973). State-trait anxiety inventory for children ("How I feel questionnaire"): Professional manual. Redwood, CA: Mind Garden.
Spieth, L. E., & Harris, C. V. (1996). Assessment of health related quality of life in children and adolescents: An integrative review. Journal of Pediatric Psychology, 21, 175-193.
Tabachnick, B. G., & Fidell, L. S. (2001). Computer-assisted research design and analysis. Boston: Allyn and Bacon.
Theunissen, N. C., Vogels, T. G., Koopman, H. M., Verrips, G. H., Zwinderman, K. A., Verloove-Vanhorick, S. P., et al. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7(5), 387-397.
Titman, P., Smith, M., & Gragam, P. (1997). Assessment of the quality of life of children. Clinical Child Psychology and Psychiatry, 2(4), 597-606.
Tsao, J. C., Meldrum, M., Kim, S. C., & Zeltzer, L. K. (2007). Anxiety sensitivity and health-related quality of life in children with chronic pain. The Journal of Pain, 8(10), 814-823.
Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL: Measurement model for the pediatric quality of life inventory. Medical Care, 37, 126-139.
Varni, J. W., Seid, M., & Kurtin, P. (2001). PedsQL 4. 0: Reliability and validity of the pediatric quality of life inventory version 4. 0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800-812.
Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. (2002a). The PedsQL in pediatric cancer: Reliability and validity of the pediatric quality of life inventory generic core scales, multidimensional fatigue scale, and cancer module. Cancer, 94(7), 2090-2106.
Varni, J. W., Seid, M., Smith Knight, T., Burwinkle, T., Brown, J., & Szer, I. S. (2002b). The PedsQL in pediatric rheumatology. Reliability, validity, and responsiveness of the pediatric quality of life inventory generic core scales and rheumatology module. Arthritis and Rheumatism, 46(3), 714-725.
Varni, J. W., Burwinkle, T., Seid, M., & Skarr, D. (2003). The PedsQL 4. 0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3(6), 329-341.
Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004a). The PedsQL in pediatric asthma: Reliability and validity of the pediatric quality of life. Inventory generic core scales and asthma module. Journal of Behavioral Medicine, 27(3), 297-318.
Varni, J. W., Sherman, S., Burwinkle, T., Dickinson, T. E., & Dixon, P. (2004b). The PedsQL family impact module: Preliminary reliability and validity. Health and Quality of Life Outcomes, 2(1), 55.
Varni, J. W., Burwinkle, T. M., & Lane, M. M. (2005). Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health and Quality of Life Outcomes, 3(34), 1-13.
Wallander, J. L., Schmitt, M., & Koot, H. M. (2001). Quality of life measurement in children and adolescents: Issues, instruments and applications. Journal of Clinical Psychology, 57(4), 571-585.
Weiner, N. (1948). Cybernetics. New Tork: John Wiley.
WHOQOL Group (Geneva). (1993). Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL). Quality of Life Research, 2, 153-159.
Wood, L. J., Sherman, E., Hamiwka, L. D., Blackman, M., & Wirrell, E. (2008). Depression, anxiety, and quality of life in siblings of children with intractable epilepsy. Epilepsy & Behavior, 13, 144-148.
Yeh, C. H., Chang, C. W., & Chang, P. C. (2005). Evaluating quality of life in children with cancer using children's self-reports and parent-proxy reports. Nursing Research, 54, 354-362.
Zeller, M. H., & Modi, A. C. (2006). Predictors of health-related quality of life in obese youth. Obesity, 14(1), 122-130.
