Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold - 2026
Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold
[en] This article argues that parental memoirs of schizophrenia are fruitful sites for producing relational knowledge, a form of understanding that emerges through interactions among care recipients, caregivers, and clinicians rather than residing in any single epistemic agent. It analyzes Dominique Laporte’s Mon fils, schizophrène and Josie Méndez-Negrete’s A Life on Hold as parental memoirs that narrativize knowledge about schizophrenia that often remain absent from clinical accounts. Building on the notions of narrative multiplicity and epistemic justice, the article shows how these memoirs redistribute epistemic authority across perspectives (psychiatrists’, caregivers’, and care recipients’). The article situates Laporte’s text as a testimonial memoir and Méndez-Negrete’s as an autoethnographic memoir, highlighting how both construct knowledge through caregiving. To account for their narrative strategies, it introduces the concept of hypodiegetic witnessing, which draws on Arthur Frank’s concept of witnessing and Mieke Bal’s theory of hypodiegetic narrative. Through storytelling practices such as pláticas, cuentos, intertextual references, and embedded stories, these memoirs mediate psychotic experience without claiming direct access to it. Rather than merely representing caregiving, parental memoirs generate and circulate relational knowledge, contributing to more epistemically just and polyphonic understandings of schizophrenia and mental illness.
Research Center/Unit :
Leuven Centre for Health Humanities Leuven Literary Studies and Cultural Studies Research Unit Leuven English Literature Research Group Leuven Cultural Studies Research Group
Disciplines :
Literature Arts & humanities: Multidisciplinary, general & others
Author, co-author :
Lombard, David ; Université de Liège - ULiège > Département de langues modernes : linguistique, littérature et traduction > Littérature anglaise moderne et littérature américaine
Language :
English
Title :
Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold
Original title :
[en] Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold
Publication date :
05 August 2026
Journal title :
Humanities
ISSN :
2076-0787
Publisher :
MDPI AG, Switzerland
Special issue title :
Literature and Health in the 21st Century
Volume :
15
Issue :
8
Pages :
1-16
Peer reviewed :
Peer Reviewed verified by ORBi
Development Goals :
3. Good health and well-being 10. Reduced inequalities
Abasova Narmin Pacholik-Żuromska Anita Metacognition and Epistemic Injustice in Schizophrenia Frontiers in Psychiatry 2025 15 1525178 10.3389/fpsyt.2024.1525178
Apgar Amanda The Disabled Child: Memoirs of a Normal Future University of Michigan Press Ann Arbor 2023
Bal Mieke Narratologie Klincksieck Paris 1977
Bal Mieke Notes on Narrative Embedding Poetics Today 1981 2 41 59 10.2307/1772189 41756584
Bond Lucy Craps Stef Trauma Routledge London 2019
Brown Megan C. Learning to Live Again: Contemporary US Memoir as Biopolitical Self-Care Guide Biography 2013 36 359 75 10.1353/bio.2013.0015
Chinonyerem David Awe Promise T. Okaro Chisom O. Schizophrenia: What We Know and What We Are Yet to Know Cureus 2025 17 95890
Couser Thomas G. Memoir: An Introduction Oxford University Press Oxford 2011
Crichton Paul Carel Havi Kidd Ian James Epistemic Injustice in Psychiatry BJPsych Bulletin 2017 41 65 70 10.1192/pb.bp.115.050682 28400962
Detue Frédérik Lacoste Charlotte What Testimony Does to Literature Synthesis: An Anglophone Journal of Comparative Literary Studies 2021 13 22 36 10.12681/syn.27559
Drożdżowicz Anna Epistemic Injustice in Psychiatric Practice: Epistemic Duties and the Phenomenological Approach Journal of Medical Ethics 2021 47 e69 10.1136/medethics-2020-106679 33608447
Eakin Paul J. How Our Lives Become Stories: Making Selves Cornell University Press Ithaca 1999
Editions François Bourin n.d. Groupe Chevrillon Available online: https://www.groupechevrillon.com/investissements/editions-francois-bourin/ (accessed on 2 August 2026)
Ellis Carolyn Adams Tony E. Bochner Arthur P. Autoethnography: An Overview Historical Social Research 2011 36 273 90
Enkoyee Dessalegn Fekadu Wubalem Mihretu Awoke Semahegn Agumasie Xue Siqi Tesfaye Yodit Dumke Lars De Graaff Anne Marijn Malik Aiysha Alem Atalay et al. Experiences, Needs and Priorities of Family Caregivers of People with Severe Mental Health Conditions in Low- and Middle-Income Countries: A Systematic Review of Qualitative Studies Cambridge Prisms: Global Mental Health 2026 13 e115 10.1017/gmh.2026.10224 42266844
Fierros Cindy O. Bernal Dolores Delgado VAMOS A PLATICAR: The Contours of Pláticas as Chicana/Latina Feminist Methodology Chicana/Latina Studies 2016 15 98 121
Fournier Lauren Autotheory as Feminist Practice in Art, Writing, and Criticism MIT Press Cambridge 2022
Frank Arthur W. The Wounded Storyteller: Body, Illness & Ethics The University of Chicago Press Chicago 2013
Frank Arthur W. Narrative Ethics as Dialogical Story-Telling Hastings Center Report 2014 44 S16 S20 10.1002/hast.263 24408700
Fricker Miranda Epistemic Injustice: Power and the Ethics of Knowing Oxford University Press Oxford 2009
George Bill Klijn Aadt Psychosis Susceptibility Syndrome: An Alternative Name for Schizophrenia The Lancet Psychiatry 2014 1 110 11 10.1016/s2215-0366(14)70249-4 26360566
Ginoux Laura McAllum Kirstie Shared Care, Valued Knowledge: How Family Caregivers and Healthcare Workers Negotiate Hybrid Caregiving Expertise through Relational Collaboration Health Communication 2025 15 1 12 10.1080/10410236.2025.2599481 41395965
Gordon Avery F. Ghostly Matters: Haunting and the Sociological Imagination University of Minnesota Press Minneapolis 2008
Granger Bernard Naudin Jean Idées Reçues sur la Schizophrénie Le Cavalier Bleu Paris 2022
Guajardo Francisco Alvarez Stephanie Guajardo Miguel García Samuel Guajardo José Márquez Jocabed Braceros, Mexicans, Americans, and Schools: (Re) Imagining Teaching and Learning in Mexican America Rio Bravo: A Journal of the Borderlands 2014 23 9 14
Huisman Sylvia A. Kruithof Kasper Hoogsteyns Maartje Nieuwenhuijse Appolonia M. Willems Dick L. Zaal-Schuller Ilse H. From Hidden Insights to Better Understanding: Physicians’ Perspectives on Caregivers’ Tacit Knowledge Healthcare 2025 14 25 10.3390/healthcare14010025 41516956
Kafer Alison Feminist, Queer, Crip Indiana University Press Bloomington 2013
Kantrowitz Joshua T. Correll Christoph U. Jain Rakesh Cutler Andrew J. New Developments in the Treatment of Schizophrenia: An Expert Roundtable International Journal of Neuropsychopharmacology 2023 26 322 30 10.1093/ijnp/pyad011 36932673
Kittay Eva Feder Learning from My Daughter: The Value and Care of Disabled Minds Oxford University Press Oxford 2019
Kulbaga Theresa A. Spencer Leland G. Autobiographical Epistemology: Legitimate(d) Knowledges in Life Narratives Women’s Studies in Communication 2025 48 329 50 10.1080/07491409.2025.2489601
Laporte Dominique Mon fils, schizophrène François Bourin Editeur Paris 2008
Lewis Bradley Narrative Psychiatry: How Stories Can Shape Clinical Practice Johns Hopkins University Press Baltimore 2011
Méndez-Negrete Josie A Life on Hold: Living with Schizophrenia University of New Mexico Press Albuquerque 2015
Tekin Şerife Participatory Interactive Objectivity in Psychiatry Philosophy of Science 2022 89 1166 75 10.1017/psa.2022.47
Tekin Şerife Outram Simon Michael Overcoming Mental Disorder Stigma: A Short Analysis of Patient Memoirs Journal of Evaluation in Clinical Practice 2018 24 1114 19 10.1111/jep.13009 30047215
Van Goidsenhoven Leni Masschelein Anneleen Donna Williams’s ‘Triumph’: Looking for ‘the Place in the Middle’ at Jessica Kingsley Publishers Life Writing 2018 15 171 93 10.1080/14484528.2016.1269270
Woods Angela The Sublime Object of Psychiatry: Schizophrenia in Clinical and Cultural Theory Oxford University Press Oxford 2011
Zanoni Joseph P. Dialogue and Hegemony: Sociolinguistic Analysis of ‘Charlas’ for Critique and Praxis Mediterranean Journal of Educational Studies 2008 13 39 58