Article (Scientific journals)
Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold
Lombard, David
2026 • In Humanities, 15 (8), p. 1-16
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Keywords :
schizophrenia; parental memoir; epistemic justice; witnessing; narrative multiplicity; relational knowledge; health humanities; illness narrative; autoethnography; testimony
Abstract :
[en] This article argues that parental memoirs of schizophrenia are fruitful sites for producing relational knowledge, a form of understanding that emerges through interactions among care recipients, caregivers, and clinicians rather than residing in any single epistemic agent. It analyzes Dominique Laporte’s Mon fils, schizophrène and Josie Méndez-Negrete’s A Life on Hold as parental memoirs that narrativize knowledge about schizophrenia that often remain absent from clinical accounts. Building on the notions of narrative multiplicity and epistemic justice, the article shows how these memoirs redistribute epistemic authority across perspectives (psychiatrists’, caregivers’, and care recipients’). The article situates Laporte’s text as a testimonial memoir and Méndez-Negrete’s as an autoethnographic memoir, highlighting how both construct knowledge through caregiving. To account for their narrative strategies, it introduces the concept of hypodiegetic witnessing, which draws on Arthur Frank’s concept of witnessing and Mieke Bal’s theory of hypodiegetic narrative. Through storytelling practices such as pláticas, cuentos, intertextual references, and embedded stories, these memoirs mediate psychotic experience without claiming direct access to it. Rather than merely representing caregiving, parental memoirs generate and circulate relational knowledge, contributing to more epistemically just and polyphonic understandings of schizophrenia and mental illness.
Research Center/Unit :
Leuven Centre for Health Humanities
Leuven Literary Studies and Cultural Studies Research Unit
Leuven English Literature Research Group
Leuven Cultural Studies Research Group
Disciplines :
Literature
Arts & humanities: Multidisciplinary, general & others
Author, co-author :
Lombard, David  ;  Université de Liège - ULiège > Département de langues modernes : linguistique, littérature et traduction > Littérature anglaise moderne et littérature américaine
Language :
English
Title :
Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold
Original title :
[en] Hypodiegetic Witnessing and Relational Knowledge of Schizophrenia in Dominique Laporte’s Mon Fils, Schizophrène and Josie Méndez-Negrete’s A Life on Hold
Publication date :
05 August 2026
Journal title :
Humanities
ISSN :
2076-0787
Publisher :
MDPI AG, Switzerland
Special issue title :
Literature and Health in the 21st Century
Volume :
15
Issue :
8
Pages :
1-16
Peer reviewed :
Peer Reviewed verified by ORBi
Development Goals :
3. Good health and well-being
10. Reduced inequalities
Name of the research project :
The Twenty-First-Century Schizophrenia (Graphic) Memoir: A Rhetorical-Narratological and Multi-Actor Materialist Approach
Funders :
FWO - Flemish Research Foundation
Funding number :
1217825N
Available on ORBi :
since 05 August 2026

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