Prise en charge psychologique et cognitive au cours de l’accompagnement de fin de vie de patients atteints de sclérose latérale amyotrophique. Une revue systématique.
Amyotrophic lateral sclerosis; Anxiety; Depression; End; Psychology; life; of
Abstract :
[en] Amyotrophic lateral sclerosis (ALS) is an incurable disease characterized by muscle atrophy leading to complete paralysis. Once diagnosed, the average life expectancy is three to five years. In this context, palliative and end-of-life care are essential, as well as the development of cognitive and/or psychological therapies to improve the quality of life of patients. In this context, we conducted a review of the pertinent literature about psychological and cognitive interventions in end-of-life support for ALS patients. We identified 504 references out of which only four studies met our inclusion criteria. Two studies focused on dignity therapy, one study on the delay between the diagnosis and the start of psychological care in a specialized centre, and one case-report on psychological therapy combined with a computer-assisted communication system. The results of these studies, although very limited, suggest that psychological interventions may improve the management and quality of life of end-of-life ALS patients. Further studies should investigate the impact of psychological support adapted to ALS, using, for example, computer-assisted communication allowing to implement these interventions in a larger number of patients and over the long term.
Disciplines :
Orthopedics, rehabilitation & sports medicine Neurology
Author, co-author :
Thibaut, Aurore ; Université de Liège - ULiège > GIGA Consciousness - Coma Science Group
Beaudart, Charlotte ; Université de Liège - ULiège > Département des sciences de la santé publique > Santé publique, Epidémiologie et Economie de la santé
QUINET, Magali ; Centre Neurologique et de Readaptation Fonctionnelle de Fraiture - CNRF
BOUQUIAUX, Olivier ; Centre Hospitalier Universitaire de Liège - CHU > Médecine de l'appareil locomoteur
DELSTANCHE, Stéphanie ; Centre Hospitalier Universitaire de Liège - CHU > Centre de références des Maladies Neuromusculaires > Service de neurologie
LIEVENS, Isabelle ; Centre Hospitalier Universitaire de Liège - CHU > Neurologie Sart Tilman
Kaux, Jean-François ; Université de Liège - ULiège > Département des sciences de la motricité > Médecine physique, réadaptation et traumatologie du sport
Prise en charge psychologique et cognitive au cours de l’accompagnement de fin de vie de patients atteints de sclérose latérale amyotrophique. Une revue systématique.
Alternative titles :
[en] Psychological and cognitive interventions in end-of-life support of patients with amyotrophic lateral sclerosis. A review.
Publication date :
February 2022
Journal title :
Revue Médicale de Liège
ISSN :
0370-629X
eISSN :
2566-1566
Publisher :
Université de Liège. Revue Médicale de Liège, Liège, Belgium