Research in hard-to-reach populations: challenges and strategies for conducting sexual violence studies in applicants for international protection beyond GDPR
De Schrijver, Lotte; Cismaru Inescu, Adina; Hahaut, Bastienet al.
2021 • In International Journal of Health Policy and Management
Asylum Seekers; Data Collection; Privacy; Public Health; Migrant Health; Gender Based Violence
Abstract :
[en] Background
Conducting research in hard-to-reach populations such as applicants for international protection (AIPs) brings along a number of research challenges. This is especially true for sexual violence (SV) research.
Methods
We developed a study design with the intent to reach AIPs in a randomized and anonymous manner including potential illiterate respondents as well, while avoiding as much bias as possible. However, this method was developed just before the entry into force of the new European General Data Protection Regulation (GDPR), upon which important new research challenges emerged.
Results
This paper describes the original study design developed to estimate SV prevalence in AIPs in Belgium. We discuss the impact of the GDPR on the recruitment strategy applied to conduct a survey on SV in a randomly selected sample of AIPs, the adapted approach to conduct the study beyond GDPR and lessons learned for future research on sensitive topics in hard-to-reach populations such as AIPs.
Conclusions
To achieve reliable prevalence numbers and provide high-quality data on SV in AIPs while respecting the GDPR regulations, studies will require an approach that has become significantly more time consuming and resource-intensive to implement.
Research center :
International Centre for Reproductive Health CARE-ESPRIst Institute for International Research on Criminal Policy
Disciplines :
Human health sciences: Multidisciplinary, general & others
Author, co-author :
De Schrijver, Lotte; Universiteit Gent - UGent > Department of Public Health and Primary Care > International Centre for Reproductive Health
Vandeviver, Christophe; Universiteit Gent - UGent > Department of Criminology, Criminal Law and Social Law > Institute for International Research on Criminal Policy
Keygnaert, Ines; Universiteit Gent - UGent > Department of Public Health and Primary Care > International Centre for Reproductive Health
Language :
English
Title :
Research in hard-to-reach populations: challenges and strategies for conducting sexual violence studies in applicants for international protection beyond GDPR
Publication date :
31 August 2021
Journal title :
International Journal of Health Policy and Management
eISSN :
2322-5939
Publisher :
Kerman University of Medical Science, Iran
Peer reviewed :
Peer Reviewed verified by ORBi
Name of the research project :
UN-MENAMAIS
Funders :
Politique Scientifique Fédérale (Belgique) - BELSPO
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