Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world.

Rogers, Simon N.; Alvear, Alvaro; Anesi, Alexandre; Babin, Emmanuel; Balik, Ali; Batstone, Martin; Brockmeyer, Phillipp; Carrasco, Claudia Celedon; Chien, Chih-Yen; Chirila, Magdalena; Dholam, Kanchan P.; Doss, Jennifer G.; Finizia, Caterina; Ghani, Wan M. Nabilah; Gurav, Sandeep V.; Kadir, Kathreena; Kolator, Mateusz; Lima, Roberto; Lin, Yu-Tsai; Nhongo, Simon; Ozdemir-Karatas, Meltem; Peker, Kadriye; Pesic, Zoran; RANSY, Pierre; Santos, Izabella; Schliephake, Henning; Shah, Ketan; Souza, Fernanda; Sunil, Geethu; Thankappan, Krishnakumar; Ehrsson, Ylva Tiblom; Tiple, Cristina; Tuomi, Lisa; Valerini, Sara; Lara, Pablo Vasquez; Zatonski, Tomasz; Lowe, Derek

doi:10.1002/hed.26027

Article (Scientific journals)

Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world.

Rogers, Simon N.; Alvear, Alvaro; Anesi, Alexandre et al.

2019 • In Head and Neck

Peer Reviewed verified by ORBi

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https://hdl.handle.net/2268/260832

DOI
10.1002/hed.26027

PubMed
31833121

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Keywords :

head and neck cancer; patient concerns inventory; patient prompt list; quality of life

Abstract :

[en] BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHODS: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. RESULTS: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). "Fear of the cancer returning" (39%) and "dry mouth" (37%) were most common. Twenty-five percent (524) reported less than good QOL. CONCLUSION: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL.

Disciplines :

Otolaryngology

Author, co-author :

Rogers, Simon N.

Alvear, Alvaro

Anesi, Alexandre

Babin, Emmanuel

Balik, Ali

Batstone, Martin

Brockmeyer, Phillipp

Carrasco, Claudia Celedon

Chien, Chih-Yen

Chirila, Magdalena

More authors (27 more)

Language :

English

Title :

Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world.

Publication date :

2019

Journal title :

Head and Neck

ISSN :

1043-3074

eISSN :

1097-0347

Publisher :

John Wiley & Sons, Hoboken, United States - New York

Peer reviewed :

Peer Reviewed verified by ORBi

Commentary :

Available on ORBi :

since 09 June 2021

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