Article (Scientific journals)
Activity of the alpha-1 antitrypsin deficiency registry in Belgium.
Hutsebaut, Jacques; Janssens, Wim; Louis, Renaud et al.
2015In COPD: Journal of Chronic Obstructive Pulmonary Disease, 12 (S1), p. 10-14
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Keywords :
COPD; alpha-1 antitrypsin deficiency; registry
Abstract :
[en] A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.
Disciplines :
Cardiovascular & respiratory systems
Author, co-author :
Hutsebaut, Jacques;  Hôpitaux Irix Sud > Departement of Medicine > Service of Pulmonology
Janssens, Wim
Louis, Renaud ;  Université de Liège > Département des sciences cliniques > Pneumologie - Allergologie
Willersinn, Frank
Stephenne, Xavier
Sokal, Etienne
Derom, Eric
Language :
English
Title :
Activity of the alpha-1 antitrypsin deficiency registry in Belgium.
Publication date :
04 May 2015
Journal title :
COPD: Journal of Chronic Obstructive Pulmonary Disease
ISSN :
1541-2555
eISSN :
1541-2563
Publisher :
Taylor & Francis, Philadelphia, United States
Volume :
12
Issue :
S1
Pages :
10-14
Peer reviewed :
Peer Reviewed verified by ORBi
Available on ORBi :
since 03 July 2015

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