Activity of the alpha-1 antitrypsin deficiency registry in Belgium.

[en] A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.

Disciplines :

Cardiovascular & respiratory systems

Author, co-author :

Hutsebaut, Jacques; Hôpitaux Irix Sud > Departement of Medicine > Service of Pulmonology

Janssens, Wim

Louis, Renaud ; Université de Liège > Département des sciences cliniques > Pneumologie - Allergologie

Willersinn, Frank

Stephenne, Xavier

Sokal, Etienne

Derom, Eric

Language :

English

Title :

Activity of the alpha-1 antitrypsin deficiency registry in Belgium.

Publication date :

04 May 2015

Journal title :

COPD: Journal of Chronic Obstructive Pulmonary Disease

ISSN :

1541-2555

eISSN :

1541-2563

Publisher :

Taylor & Francis, Philadelphia, United States

Volume :

Issue :

Pages :

10-14

Peer reviewed :

Peer Reviewed verified by ORBi

Additional URL :

http://dx.doi.org/10.3109/15412555.2015.1021916

Available on ORBi :

since 03 July 2015

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Bibliography

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