ORBi: Detailled Reference

Article (Scientific journals)

Quelle vie apres le Locked-In syndrome?

Bruno, Marie-Aurélie; Pellas, F.; Bernheim, J. L. et al.

2008 • In Revue Médicale de Liège, 63 (5-6), p. 445-51

Peer reviewed

Permalink
https://hdl.handle.net/2268/67838

PubMed
18669218

Files (1)Send to Details Statistics Bibliography Similar publications

Files

Full Text

500.pdf

Publisher postprint (391.08 kB)

All documents in ORBi are protected by a user license.

Send to

RIS BibTex APA Chicago Permalink X Linkedin

Details

Keywords :

Humans; Prognosis; Quadriplegia/diagnosis; Quality of Life

Abstract :

[en] The Locked-In Syndrome (LIS) is classically caused by an anterior pontine vascular lesion and characterized by quadriplegia and anarthria with preserved consciousness and intellectual functioning. We here review the definition, etiologies, diagnosis and prognosis of LIS patients and briefly discuss the few studies on their quality of life and the challenging end-of-life decisions that can be encountered. Some clinicians may consider that LIS is worse than being in a vegetative or in a minimally conscious state. However, preliminary data from chronic LIS survivors show a surprisingly preserved self-scored quality of life and requests of treatment withdrawal or euthanasia, though not absent, are infrequent.

Disciplines :

Neurology
Anesthesia & intensive care

Author, co-author :

Bruno, Marie-Aurélie ; Université de Liège - ULiège > Centre de recherches du cyclotron

Pellas, F.

Bernheim, J. L.

Ledoux, Didier ; Centre Hospitalier Universitaire de Liège - CHU > Soins intensifs

Goldman, S.

Demertzi, Athina ; Université de Liège - ULiège > Centre de recherches du cyclotron

Majerus, Steve ; Université de Liège - ULiège > Département des sciences cognitives > Psychopathologie cognitive

Vanhaudenhuyse, Audrey ; Université de Liège - ULiège > Centre de recherches du cyclotron

Blandin, V.

Boly, Mélanie ; Université de Liège - ULiège > Département des sciences cliniques > Neurologie

More authors (4 more)

Language :

French

Title :

Quelle vie apres le Locked-In syndrome?

Alternative titles :

[en] Life with Locked-In syndrome

Publication date :

2008

Journal title :

Revue Médicale de Liège

ISSN :

0370-629X

eISSN :

2566-1566

Publisher :

Hopital de Baviere, Liège, Belgium

Volume :

63

Issue :

5-6

Pages :

445-51

Peer reviewed :

Peer reviewed

Available on ORBi :

since 05 August 2010

Statistics

Number of views

240 (20 by ULiège)

Number of downloads

6 (2 by ULiège)

More statistics

Scopus citations^®

8

Scopus citations^®
without self-citations

3

OpenAlex citations

9

Bibliography

Bauby J-D. - Le scaphandre et le papillon. Paris, ed. ER Laffont. 1997.
Plum F, Posner JB. - The diagnosis of stupor and coma. 1st ed. 1966, Philadelphia : Davis, F.A.
American Congress of Rehabilitation Medicine. - Recommendations for use of uniform nomenclature pertinent to patients with severe alterations of consciousness. Arch Phys Med Rehabil, 1995, 76, 205-209.
Bauer G, Gerstenbrand F, Rumpl E. - Varieties of the locked-in syndrome. J Neurol, 1979, 221, 77-91.
Laureys S, Pellas F, Van Eeckhout P, et al. - The locked-in syndrome : what is it like to be conscious but paralyzed and voiceless? Prog Brain Res, 2005, 150, 495-511.
Kotchoubey B, Lang S, Winter S, et al. - Cognitive processing in completely paralyzed patients with amyotrophic lateral sclerosis. Eur J Neurol, 2003, 10, 551-558.
Majerus S, Gill-Thwaites H, Andrews K, et al. - Behavioral evaluation of consciousness in severe brain damage. Prog Brain Res, 2005, 150, 397-413.
Schnakers C, Giacino J, Kalmar K, et al. - Does the FOUR score correctly diagnose the vegetative and minimally conscious states? Ann Neurol, 2006, 60, 744-745.
Leon-Carrion J, van Eeckhout P, Dominguez-Morales Mdel R, et al. - The locked-in syndrome: a syndrome looking for a therapy. Brain Inj, 2002, 16, 571-582.
Perrin F, Schnakers C, Schabus M, et al. - Brain response to one's own name in vegetative state, minimally conscious state, and locked-in syndrome. Arch Neurol, 2006, 63, 562-569.
Laureys S, Owen AM, Schiff ND. - Brain function in coma, vegetative state, and related disorders. Lancet Neurol, 2004, 3, 537-546.
Laureys S, Perrin F, Bredart S. - Self-consciousness in non-communicative patients. Conscious Cogn, 2007, 16, 722-741; discussion 742-725.
Markand ON. - Electroencephalogram in «Locked-In» Syndrome. Electroencephalogr Clin Neurophysiol, 1976, 40, 529-534.
Patterson JR, Grabois M. - Locked-in syndrome: a review of 139 cases. Stroke, 1986, 17, 758-764.
Leon-Carrion J, van Eeckhout P Dominguez-Morales Mdel R. - The locked-in syndrome: a syndrome looking for a therapy. Brain Inj, 2002, 16, 555-569.
Levy DE, Sidtis JJ, Rottenberg DA, et al. - Differences in cerebral blood flow and glucose utilization in vegetative versus locked-in patients. Ann Neurol, 1987, 22, 673-682.
Haig AJ, Katz RT Sahgal V. - Mortality and complications of the locked-in syndrome. Arch Phys Med Rehabil, 1987, 68, 24-27.
Doble JE, Haig AJ, Anderson C, et al. - Impairment, activity, participation, life satisfaction, and survival in persons with locked-in syndrome for over a decade: follow-up on a previously reported cohort. J Head Trauma Rehabil, 2003, 18, 435-444.
Richard I, Pereon Y, Guiheneu P, et al. - Persistence of distal motor control in the locked in syndrome. Review of 11 patients. Paraplegia, 1995, 33, 640-646.
Casanova E, Lazzari RE, Lotta S, et al. - Locked-in syndrome: improvement in the prognosis after an early intensive multidisciplinary rehabilitation. Arch Phys Med Rehabil, 2003, 84, 862-867.
Bernheim JL. - Evaluation de la qualite de la vie en cours de traitement. Bull Cancer, 1986, 73, 614-619.
Carr AJ, Gibson B Robinson PG. - Measuring quality of life: Is quality of life determined by expectations or experience? BMJ, 2001, 322, 1240-1243.
Bernheim JL. - How to get serious answers to the serious question: «How have you been?»: subjective quality of life (QOL) as an individual experiential emergent construct. Bioethics, 1999, 13, 272-287.
Wood-Dauphinee S Williams JI. - Reintegration to Normal Living as a proxy to quality of life. J Chronic Dis, 1987, 40, 491-502.
Ware JE, Snow KK Kosinski M. - SF-36 Health survey manual and interpretation guide. 1993, Boston, MA: The Health Institute, New England Medical Center.
Leplege A, Ecosse E, Verdier A, et al. - The French SF-36 Health Survey: translation, cultural adaptation and preliminary psychometric evaluation. J Clin Epidemiol, 1998, 51, 1013-1023.
Bruno MA, Pellas F, Schnakers C, et al. - Le Locked-In Syndrome : la conscience emmurée. Revue Neurologique, 2008 sous presse.
Ethics and Humanities Subcommittee of the AAN. - Position statement : certain aspects of the care and management of profoundly and irreversibly paralyzed patients with retained consciousness and cognition. Report of the Ethics and Humanities Subcommittee of the American Academy of Neurology. Neurology, 1993, 43, 222-223.
Humbert V. - Je vous demande le droit de mourir. 2003 : Ed. Michel Lafon.
Guerra MJ. - Euthanasia in Spain: the public debate after Ramon Sampedro's case. Bioethics, 1999, 13, 426-432.
Bruno M, Bernheim JL, Schnakers C, et al. - Locked-in: don't judge a book by its cover. J Neurol Neurosurg Psychiatry, 2008, 79, 2.
Bruno MA, Pellas F Laureys S. - Quality of life in locked-in syndrome, in 2008 Yearbook of Intensive Care and Emergency Medicine, JL Vincent, Editor. 2008, Springer-Verlag : Berlin. p. 881-890.
Allain P, Joseph PA, Isambert JL, et al. - Cognitive functions in chronic locked-in syndrome: a report of two cases. Cortex, 1998, 34, 629-634.
Cappa SF Vignolo LA. - Locked-in syndrome for 12 years with preserved intelligence. Ann Neurol, 1982, 11, 545.
Schnakers C, Majerus S, Goldman S, et al. - Cognitive function in the locked-in syndrome. J Neurol, 2008, 255, 323-330.

Similar publications