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Poster (Scientific congresses and symposiums)
POLR3-related Leukodystrophy: A Qualitative Study on Parents’ Experiences with the Healthcare System
Le, A; Thibault, KA; Morsa, Maxime et al.
2024RareDIG Rare Disease Day 2024
Peer reviewed
 

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Keywords :
Qualitative Research, Thematic Analysis, Patient Experience
Disciplines :
Social & behavioral sciences, psychology: Multidisciplinary, general & others
Author, co-author :
Le, A
Thibault, KA
Morsa, Maxime  ;  Université de Liège - ULiège > Département de Psychologie > Recherche qualitative ; Université de Liège - ULiège > Adaptation, Résilience et CHangement (ARCH)
Bernard, G
Language :
English
Title :
POLR3-related Leukodystrophy: A Qualitative Study on Parents’ Experiences with the Healthcare System
Publication date :
2024
Event name :
RareDIG Rare Disease Day 2024
Event place :
Montréal, Canada
Event date :
21 March 2025
Audience :
International
Peer reviewed :
Peer reviewed
Commentary :
First place winner
Available on ORBi :
since 23 April 2024

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