[en] [en] OBJECTIVES: Autism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs.
METHODS: This was a descriptive cross-sectional study conducted through a declarative and self-administered survey in France.
RESULTS: 1,013 individuals answered the questionnaire in 2020. If most caregivers felt they had sufficient knowledge about ASD, they still expressed a high level of needs regarding acquiring knowledge, identifying available resources, and finding social/emotional support.
CONCLUSIONS: This study highlights the high level of needs of caregivers and their expectations of improving their knowledge and skills to help the person with ASD.
Disciplines :
Treatment & clinical psychology
Author, co-author :
Colombet, Claire; Centre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France. rech-clinique-autisme@chu-montpellier.fr
Alcaraz, Céline; Centre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France
de la Tribonnière, Xavier; Unité transversale d'éducation du patient (UTEP), CHU Montpellier, Montpellier, France ; Faculté de Médecine, Université de Montpellier, Montpellier, France
Morsa, Maxime ; Université de Liège - ULiège > Département de Psychologie > Recherche qualitative ; Laboratoire Education et Pratiques de Santé (UR3412), Université Paris Sorbonne Paris Nord, Bobigny, France
Rattaz, Cécile; Centre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France
Baghdadli, Amaria ; Centre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France ; Faculté de Médecine, Université de Montpellier, Montpellier, France ; Université Paris-Saclay, UVSQ, Inserm, CESP, Team DevPsy, 94807, Villejuif, France
Language :
English
Title :
Self-reported needs of caregivers of people with Autism Spectrum Disorder.
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