Article (Scientific journals)
The "Alzheimer Village": Assessment of Alzheimer's disease representations in the general population: A cross sectional phone survey.
Pech, Marion; Meillon, Céline; Marquet, Manon et al.
2022In Alzheimer's and Dementia: Translational Research and Clinical Interventions, 8 (1), p. 12328
 

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Keywords :
The Landes Alzheimer Village; aging and Alzheimer's disease; dementia‐friendly; societal representations; Neurology (clinical); Psychiatry and Mental Health
Abstract :
[en] [en] INTRODUCTION: In most countries, the societal view of Alzheimer's disease (AD) is very negative. The initiatives that are part of the so-called "dementia-friendly approach" aim not only at promoting well-being and dignity of persons suffering from AD but also improving the way they are regarded and their inclusion in society. Unfortunately, scarce research has been conducted to assess whether such goals can be achieved. In France, the experimental Alzheimer Village in Dax is designed as a dementia-friendly community. Due to the recent opening (2020) and the strong local media coverage of this project, a survey has been designed to determine whether the representations of AD have been impacted by such a project. METHODS: The survey was conducted before and after the opening of the Alzheimer Village in the city of Dax (hosting the village) and surrounding areas, and in a control city with similar socio-demographics. The analyses intend to compare different dimensions of the representations and attitudes toward AD in the general population. RESULTS: A total of 423 persons living in the Alzheimer Village city (37.4% were men) and 415 persons living in the control city (40.2% were men) were interviewed, resulting in 838 complete questionnaires. The main results report significantly lower rating in the perception of loss of identity (β = -0.57, P = .014) and in the feeling of disgust for persons with AD (β = -0.61, P = .008) in the city hosting the village after the opening of the Alzheimer Village. No significant changes were seen in the control city sample. DISCUSSION: While societal representations of AD are very robust and difficult to change, this study suggests a modest but significant evolution of representations of AD in the surrounding areas of the Alzheimer Village. HIGHLIGHTS: The French Alzheimer Village is one of the very few ones in the world.This is the first study assessing the impact of an Alzheimer Village on disease representations.After the opening of the village, attitudes toward Alzheimer's disease have changed.
Disciplines :
Theoretical & cognitive psychology
Author, co-author :
Pech, Marion;  INSERM Bordeaux Population Health Research Center UMR 1219 Université de Bordeaux Bordeaux France
Meillon, Céline;  INSERM Bordeaux Population Health Research Center UMR 1219 Université de Bordeaux Bordeaux France
Marquet, Manon ;  Université de Liège - ULiège
Dartigues, Jean-François;  INSERM Bordeaux Population Health Research Center UMR 1219 Université de Bordeaux Bordeaux France
Amieva, Hélène;  INSERM Bordeaux Population Health Research Center UMR 1219 Université de Bordeaux Bordeaux France
Language :
English
Title :
The "Alzheimer Village": Assessment of Alzheimer's disease representations in the general population: A cross sectional phone survey.
Publication date :
2022
Journal title :
Alzheimer's and Dementia: Translational Research and Clinical Interventions
eISSN :
2352-8737
Publisher :
John Wiley and Sons Inc, United States
Volume :
8
Issue :
1
Pages :
e12328
Funding text :
This work is part of a project supported by Health Regional Agency Nouvelle‐Aquitaine, Fondation Spoelberch, CNSA, Fonds de dotation B2V des Mémoires, Association France Alzheimer. The sponsor had no role in the design, data collection, analysis, and preparation of the manuscript.This work is part of a project supported by Health Regional Agency Nouvelle-Aquitaine, Fondation Spoelberch, CNSA, Fonds de dotation B2V des Mémoires, Association France Alzheimer. The sponsor had no role in the design, data collection, analysis, and preparation of the manuscript.
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since 02 May 2023

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