Childhood cancer survivor; Intolerance of uncertainty; Parental distress; Parents; Worries; Oncology; Clinical Psychology; Oncology (nursing); Psychiatry and Mental Health
Abstract :
[en] Introduction: Studies on worry and distress in parents of a childhood cancer survivor are less developed in the literature. The aim of the study was to examine the intensity of worry and its association with intolerance of uncertainty factor and anxiety–depressive symptoms. Methods: In total, 61 parents of a childhood cancer survivor (4–6 years of remission) participated in the study. Parents completed several questionnaires assessing worry, intolerance of uncertainty, and anxiety–depressive symptoms. Results: The majority of parents suffer from anxiety symptoms and intense worries about the health of their childhood cancer survivor. The factor of intolerance of uncertainty seems to contribute to explain the intensity of parental worries. Conclusion: Recommendations have been published concerning the management of parents of a childhood cancer survivor, but longitudinal studies focusing on the parent are still needed to improve prevention and management initiatives for these families.
Disciplines :
Treatment & clinical psychology
Author, co-author :
Vander Haegen, Marie ; Université de Liège - ULiège > Département de Psychologie > Psychologie de la santé
Etienne, Anne-Marie ; Université de Liège - ULiège > Département de Psychologie > Psychologie de la santé ; Liège, Belgium
Language :
French
Title :
Étude sur les inquiétudes parentales et ses facteurs associés dans le cadre de la rémission d’un cancer pédiatrique
scite shows how a scientific paper has been cited by providing the context of the citation, a classification describing whether it supports, mentions, or contrasts the cited claim, and a label indicating in which section the citation was made.
Bibliography
Belgian Cancer Registry.org [site internet]. Cancer incidence in Belgium, special issues: Cancer in children and adolescents. Consultable sur: http://kankerregister.org/media/docs/SKR_CancerChildrenandAdolescents_2004_2016_HR12092019.pdf (accès le 8 février 2020)
Spector LG, Pankratz N, Marcotte EL (2015) Genetic and non-genetic risk factors for childhood cancer. Pediatr Clin North Am 62:11–25
Ljungman L, Cernvall M, Grönqvist H, et al (2014) Long-term positive and negative psychological late effects for parents of childhood cancer survivors: a systematic review. PLoS One 9: e103340
Barnett M, McDonnell G, DeRosa A, et al (2016) Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): a systematic review. J Cancer Surviv 10:814–31
Bruce M, Gumley D, Isham L, et al (2011) Post-traumatic stress symptoms in childhood brain tumour survivors and their parents. Child Care Health Dev 37:244–51
Forinder U, Lindahl-Norberg AL (2010) “Now we have to cope with the rest of our lives”. Existential issues related to parenting a child surviving a brain tumour. Support Care Cancer 18:543–51
Vander Haegen M, Luminet O (2015) Stress, psychosocial mediators and cognitive mediators in parents of child cancer patients and cancer survivors: attention and working memory pathway perspectives. J Psychosoc Oncol 33:504–50
Wakefield CE, McLoone JK, Butow P, et al (2011). Parental adjustment to the completion of their child’s cancer treatment. Pediatr Blood Cancer 56:524–31
Michel G, Taylor N, Absolom K, et al (2010) Benefit finding in survivors of childhood cancer and their parents: further empirical support for the Benefit Finding Scale for Children. Child Care Health and Dev 36:123–9
Wikman A, Mattsson E, von Essen L, et al (2018) Prevalence and predictors of symptoms of anxiety and depression, and comorbid symptoms of distress in parents of childhood cancer survivors and bereaved parents five years after end of treatment or a child’s death. Acta Oncol 57:950–7
Jacobs LA, Pucci DA (2013) Adult survivors of childhood cancer: the medical and psychosocial late effects of cancer treatment and the impact on sexual and reproductive health. J Sex Med 10:120–6
Quin S (2005) The long-term psychosocial effects of cancer diagnosis and treatment on children and their families. Soc Work Health Care 39:129–49
Sultan S, Leclair T, Rondeau E, et al (2016) A systematic review on factors and consequences of parental distress as related to childhood cancer. Eur J Cancer Care 25:616–37
Freeston MH, Rhéaume J, Letarte J, et al (1994) Why do people worry? Pers Individ Dif 17:791–802
Dugas MJ, Gagnon F, Ladouceur R, et al (1998) Generalized anxiety disorder: a preliminary test of a conceptual model. Behav Res Ther 36:215–26
Signorelli C, Wakefield C, Fardell JE, et al (2017) The impact of long-term follow-up care for childhood cancer survivors: a systematic review. Crit Rev Oncol Hematol 114:131–8
Vander Haegen M, Etienne AM, Flahault C (2022) Première étude des qualités psychométriques de la version française du questionnaire d’inquiétudes parentales (QIPS-R15) dans le cadre d’une maladie chronique pédiatrique. Rev Eur Psychol Appl 72 (5):100765
Meyer TJ, Miller ML, Metzger RL, et al (1990) Development and validation of the Penn State Worry Questionnaire. Behav Res Ther 28:87–495
Zigmond AS, Snaith RP (1983) The Hospital Anxiety and Depression Scale. Acta Psychiatr Scand 67:361–70
Field A (2013) Discovering statistics using SPSS: and sex and drugs and rock’n’roll. Sage, London
Turner JK, Hutchinson A, Wilson C (2018) Correlates of post-traumatic growth following childhood and adolescent cancer: a systematic review and meta-analysis. Psycho-Oncol 27:1100–9
This website uses cookies to improve user experience. Read more
Save & Close
Accept all
Decline all
Show detailsHide details
Cookie declaration
About cookies
Strictly necessary
Performance
Strictly necessary cookies allow core website functionality such as user login and account management. The website cannot be used properly without strictly necessary cookies.
This cookie is used by Cookie-Script.com service to remember visitor cookie consent preferences. It is necessary for Cookie-Script.com cookie banner to work properly.
Performance cookies are used to see how visitors use the website, eg. analytics cookies. Those cookies cannot be used to directly identify a certain visitor.
Used to store the attribution information, the referrer initially used to visit the website
Cookies are small text files that are placed on your computer by websites that you visit. Websites use cookies to help users navigate efficiently and perform certain functions. Cookies that are required for the website to operate properly are allowed to be set without your permission. All other cookies need to be approved before they can be set in the browser.
You can change your consent to cookie usage at any time on our Privacy Policy page.