Health-related quality of life after traumatic brain injury: deriving value sets for the QOLIBRI-OS for Italy, The Netherlands and The United Kingdom

Voormolen, D. C.; Polinder, S.; von Steinbuechel, N.; Feng, Y.; Wilson, L.; Oppe, M.; Haagsma, J. A.; Åkerlund, C.; Adams, H.; Amrein, K.; Andelic, N.; Andreassen, L.; Anke, A.; Antoni, A.; Audibert, G.; Azouvi, P.; Azzolini, M. L.; Bartels, R.; Barzó, P.; Beauvais, R.; Beer, R.; Bellander, B.-M.; Belli, A.; Benali, H.; Berardino, M.; Beretta, L.; Blaabjerg, M.; Bragge, P.; Brazinova, A.; Brinck, V.; Brooker, J.; Brorsson, C.; Buki, A.; Bullinger, M.; Cabeleira, M.; Caccioppola, A.; Calappi, E.; Calvi, M. R.; Cameron, P.; Lozano, G. C.; Carbonara, M.; Castaño-León, A. M.; Chevallard, G.; Chieregato, A.; Citerio, G.; Cnossen, M.; Coburn, M.; Coles, J.; Cooper, J. D.; Correia, M.; Čović, A.; Curry, N.; Czeiter, E.; Czosnyka, M.; Dahyot-Fizelier, C.; Dawes, H.; De Keyser, Véronique; Degos, V.; Corte, F. D.; Boogert, H.; Depreitere, B.; Đilvesi, Đ.; Dixit, A.; Donoghue, E.; Dreier, J.; Dulière, G.-L.; Ercole, A.; Esser, P.; Ezer, E.; Fabricius, M.; Feigin, V. L.; Foks, K.; Frisvold, S.; Furmanov, A.; Gagliardo, P.; Galanaud, D.; Gantner, D.; Gao, G.; George, P; Ghuysen, Alexandre; Giga, L.; Glocker, B.; Golubovic, J.; Gomez, P. A.; Gratz, J.; Gravesteijn, B.; Grossi, F.; L.Gruen, R.; Gupta, D.; Haitsma, I.; Helbok, R.; Helseth, E.; Horton, L.; Huijben, J.; Hutchinson, P. J.; Jacobs, B.; Jankowski, S.; Jarrett, M.; Jiang, J.-Y.; Jones, K.; Karan–, M.; Kolias, A. G.; Kompanje, E.; Kondziella, D.; Koskinen, L.-O.; Kovács, N.; Lagares, A.; Lanyon, L.; Laureys, Steven; Lecky, F.; Lefering, R.; Legrand, Victor; Lejeune, Aurélie; Levi, L.; Lightfoot, R.; Lingsma, H.; Maas, A. I. R.; Maegele, M.; Majdan, M.; Manara, A.; Manley, G.; Martino, C.; Maréchal, H.; Mattern, J.; McFadyen, C.; McMahon, C.; Melegh, B.; Menon, D.; Menovsky, T.; Mulazzi, D.; Muraleedharan, V.; Murray, L.; Nair, N.; Negru, A.; Nelson, D.; Newcombe, V.; Nieboer, D.; Noirhomme, Quentin; Nyirádi, J.; Olubukola, O.; Oresic, M.; Ortolano, F.; Palotie, A.; Parizel, P. M.; Payen, J.-F.; Perera, N.; Perlbarg, V.; Persona, P.; Peul, W.; Piippo-Karjalainen, A.; Pirinen, M.; Ples, H.; Pomposo, I.; Posti, J. P.; Puybasset, L.; Radoi, A.; Ragauskas, A.; Raj, R.; Rambadagalla, M.; Real, R.; Rhodes, J.; Richardson, S.; Richter, S.; Ripatti, S.; Rocka, S.; Roe, C.; Roise, O.; Rosand, J.; Rosenfeld, J. V.; Rosenlund, C.; Rosenthal, G.; Rossaint, R.; Rossi, S.; Rueckert, D.; Rusnák, M.; Sahuquillo, J.; Sakowitz, O.; Sanchez-Porras, R.; Sandor, J.; Schäfer, N.; Schmidt, S.; Schoechl, H.; Schoonman, G.; Schou, R. F.; Schwendenwein, E.; Sewalt, C.; Skandsen, T.; Smielewski, P.; Sorinola, A.; Stamatakis, E.; Stanworth, S.; Stevanovic, A.; Stevens, R.; Stewart, W.; Steyerberg, E. W.; Stocchetti, N.; Sundström, N.; Synnot, A.; Takala, R.; Tamás, V.; Tamosuitis, T.; Taylor, M. S.; Ao, B. T.; Tenovuo, O.; Theadom, A.; Thomas, M.; Tibboel, D.; Timmers, M.; Tolias, C.; Trapani, T.; Tudora, C. M.; Vajkoczy, P.; Vallance, S.; Valeinis, E.; Vámos, Z.; Van der Steen, G.; van der Naalt, J.; van Dijck, J. T. J. M.; van Essen, T.; Van Hecke, W.; van Heugten, C.; Van Praag, D.; Vyvere, T. V.; Vanhaudenhuyse, Audrey; van Wijk, R. P. J.; Vargiolu, A.; Vega, E.; Velt, K.; Verheyden, J.; Vespa, P. M.; Vik, A.; Vilcinis, R.; Volovici, V.; von Steinbüchel, N.; Voormolen, D.; Vulekovic, P.; Wang, K. K. W.; Wiegers, E.; Williams, G.; Wolf, S.; Yang, Z.; Ylén, P.; Younsi, A.; Zeiler, F. A.; Zelinkova, V.; Ziverte, A.; Zoerle, T.; the CENTER-TBI participants and investigators

doi:10.1007/s11136-020-02583-6

Article (Scientific journals)

Health-related quality of life after traumatic brain injury: deriving value sets for the QOLIBRI-OS for Italy, The Netherlands and The United Kingdom

Voormolen, D. C.; Polinder, S.; von Steinbuechel, N. et al.

2020 • In Quality of Life Research

Peer Reviewed verified by ORBi

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https://hdl.handle.net/2268/257705

DOI
10.1007/s11136-020-02583-6

PubMed
32671617

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Keywords :

Health utilities; Health-related quality of life; Quality of life after brain injury overall scale (QOLIBRI-OS); Traumatic brain injury; Value set

Abstract :

[en] Purpose: The Quality of Life after Brain Injury overall scale (QOLIBRI-OS) measures health-related quality of life (HRQoL) after traumatic brain injury (TBI). The aim of this study was to derive value sets for the QOLIBRI-OS in three European countries, which will allow calculation of utility scores for TBI health states. Methods: A QOLIBRI-OS value set was derived by using discrete choice experiments (DCEs) and visual analogue scales (VAS) in general population samples from the Netherlands, United Kingdom and Italy. A three-stage procedure was used: (1) A selection of health states, covering the entire spectrum of severity, was defined; (2) General population samples performed the health state valuation task using a web-based survey with three VAS questions and an at random selection of sixteen DCEs; (3) DCEs were analysed using a conditional logistic regression and were then anchored on the VAS data. Utility scores for QOLIBRI-OS health states were generated resulting in estimates for all potential health states. Results: The questionnaire was completed by 13,623 respondents. The biggest weight increase for all attributes is seen from “slightly” to “not at all satisfied”, resulting in the largest impact on HRQoL. “Not at all satisfied with how brain is working” should receive the greatest weight in utility calculations in all three countries. Conclusion: By transforming the QOLIBRI-OS into utility scores, we enabled the application in economic evaluations and in summary measures of population health, which may be used to inform decision-makers on the best interventions and strategies for TBI patients. © 2020, The Author(s).

Disciplines :

Public health, health care sciences & services

Author, co-author :

Voormolen, D. C.; Department of Public Health, Erasmus MC, University Medical Center Rotterdam, PO Box 2040, Rotterdam, 3000 CA, Netherlands

Polinder, S.; Department of Public Health, Erasmus MC, University Medical Center Rotterdam, PO Box 2040, Rotterdam, 3000 CA, Netherlands

von Steinbuechel, N.; Institute of Medical Psychology and Medical Sociology, Georg-August-University, Waldweg 37, Göttingen, 37073, Germany

Feng, Y.; Centre for Primary Care and Public Health, Queen Mary University of London, London, United Kingdom

Wilson, L.; Department of Psychology, University of Stirling, Stirling, United Kingdom

Oppe, M.; Axentiva Solutions, C/Calvario, 271-B 1º IZQ, Tacoronte, Santa Cruz de Tenerife, 38350, Spain

Haagsma, J. A.; Department of Public Health, Erasmus MC, University Medical Center Rotterdam, PO Box 2040, Rotterdam, 3000 CA, Netherlands, Department of Emergency Medicine, Erasmus MC, University Medical Center Rotterdam, Rotterdam, Netherlands

Åkerlund, C.

Adams, H.

Amrein, K.

More authors (238 more)

Language :

English

Title :

Health-related quality of life after traumatic brain injury: deriving value sets for the QOLIBRI-OS for Italy, The Netherlands and The United Kingdom

Publication date :

2020

Journal title :

Quality of Life Research

ISSN :

0962-9343

eISSN :

1573-2649

Publisher :

Springer

Peer reviewed :

Peer Reviewed verified by ORBi

European Projects :

FP7 - 602150 - CENTER-TBI - Collaborative European NeuroTrauma Effectiveness Research in TBI

Funders :

EU - European Union

Available on ORBi :

since 07 March 2021

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