References of "Tilkin, Caroline"
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See detailAjustement psychoclinique de l’adulte et de l’enfant dans le champ de l’oncologie : perspective du patient et du proche
Vander Haegen, Marie ULiege; Stassart, Céline ULiege; Tilkin, Caroline ULiege et al

in Muller, Laurent; Dany, Luc (Eds.) Pratiques et interventions en psychologie de la santé. (in press)

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See detailConsidering Patients’ Empowerment in Chronic Care Management: A Cross-Level Approach
Tilkin, Caroline ULiege; De Winter, Mélanie ULiege; Ketterer, Frédéric ULiege et al

in European Journal of Investigation in Health, Psychology and Education (2019)

This paper consists of an analysis of the concept of empowerment—which is often defined as a key issue in health care—at the macro, meso, and micro levels by focusing on health care reform in Belgium ... [more ▼]

This paper consists of an analysis of the concept of empowerment—which is often defined as a key issue in health care—at the macro, meso, and micro levels by focusing on health care reform in Belgium. Three research teams collected data and combined them in an inductive secondary analysis. Our preliminary results demonstrate that patient empowerment does not always encompass the same scientific reality. At the macro level, this concept is linked to the authorities’ wish to support at-home care for chronic patients. At the meso level, the role of caregivers in maintaining patients’ autonomy, but also the social conditions of their lives, is a salient component of empowerment. At the micro level, individual and personal features such as identity can influence patient empowerment and behavior in the health care system. This cross-level research suggests that patient empowerment is not sufficiently clearly defined at each level of the care production chain, which could impede the reform of health care. This paper underlines the polysemy of a concept viewed as a milestone in European health care policy and the necessity of a clear, collective definition to operationalize and implement it. [less ▲]

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See detailUnderstanding identity and its associated factors in cancer survivorship: A scoping review
Tilkin, Caroline ULiege; Vander Haegen, Marie ULiege; Etienne, Anne-Marie ULiege et al

Poster (2019, May 14)

Purpose. According to recent studies, the “survivor identity” is potentially a key factor for the psychological well-being of cancer survivors. But what exactly lay behind this concept remains unclear ... [more ▼]

Purpose. According to recent studies, the “survivor identity” is potentially a key factor for the psychological well-being of cancer survivors. But what exactly lay behind this concept remains unclear. The current review aimed to identify existing conceptualizations of the identity and its associated factors in adult cancer survivors. Methods. A scoping review was conducted following PRISMA-ScR guidelines. Three core databases (MEDLINE/Ovid, PsycINFO/Ovid and Scopus) were searched. Relevant studies from January 1985* to July 2018 were screened through a multi-step process guided by two independent reviewers. Results. Fifty-one articles were preliminary included for data extraction: 43% were quantitative studies, 47% were qualitative studies and 10% were mixed-methods design studies. Only 30% of the studies were related to the identification to the survivor’s identity. About 70% of the studies concerned other conceptualizations such as global self-concept (28%) or body image (23%). Quality of life was the most frequently associated factor (more than 26% of the studies). Conclusions. Several clinical (e.g. self-image, quality of life) but also psychosocial (e.g. socialization) factors related to the identity were found. Our results highlighted that identity in cancer survivorship is a complex issue where the survivor identity remains solely one piece of the puzzle. [less ▲]

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See detailConsidering patients’ empowerment in chronic care management: a multidisciplinary approach
Tilkin, Caroline ULiege; De Winter, Mélanie ULiege; Ketterer, Frédéric ULiege et al

in International Journal of Integrated Care (2018)

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See detailAssessment using e-Health technologies in pediatric psychology: Developing an App on iPad for the Quality of Life Systemic Inventory for Children (QLSI-C)
Toucheque, Malorie ULiege; Tilkin, Caroline ULiege; Dupuis, Gilles et al

Poster (2014, March)

Objective:Integration of e-Health technologies for purposes of both assessment and intervention has recently become an interest area in pediatric psychology. The purpose of this study is to present ... [more ▼]

Objective:Integration of e-Health technologies for purposes of both assessment and intervention has recently become an interest area in pediatric psychology. The purpose of this study is to present psychometric characteristics of a technology-based (i.e., iPad administration) approach for measuring quality of life (QoL) in children. Methods: Sample consisted of 80 children (8-12 years) recruited from elementary schools in Belgium. They completed the Quality of Life Systemic Inventory for Children (QLSI-C) twice over a two-week delay, in a crossover design that used paper and iPad-based modes of administration. QLSI-C takes a unique approach to assessing QoL relative to existing measures. Specifically, it considers QoL to be the difference (gap score) between the present situation (state score) and the child’s expectations (goal), weighted by the importance (rank) assigned for each life domain. Cronbach’s coefficient was computed to assess internal consistency for each of the four global scores (State, Goal, Gap, Rank). ANOVA was used to assess the equivalence of the new iPad and paper formats. Test-retest reliability was assessed using correlational analysis. Results: Alpha coefficients for the global scores were as follows: State (.87), Goal (.94), Gap (.72), and Rank (.79). ANOVA results indicate that main effects for group (p = 0.75) and time (p= 0.31) were not statistically significant, nor was the interaction effect (p = 0.86) for the QoL score (Gap). Correlations for the test-retest reliability of the 4 global scores ranged from .66 to .90. Conclusions: The iPad format of QLSI-C appears valid in comparison to the original paper format and test-retest stability for the iPad format is good. This technology approach to assessment is more attractive for children, decreases time for administration, and enhances the ease of scoring. Thus, these advantages might encourage both clinicians and researchers to consider using e-Health developments in assessment in pediatric psychology. [less ▲]

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See detailQualité de vie de l’enfant avec antécédents oncologiques et adaptation parentale : étude exploratoire
Tilkin, Caroline ULiege; Toucheque, Malorie ULiege; Missotten, Pierre ULiege et al

in Revue Médicale de Liège (2014)

Cette étude envisage la qualité de vie (QV) de l’enfant avec antécédents oncologiques et celle de ses parents ainsi que la relation entre l’adaptation parentale et la QV de l’enfant. Deux groupes ont été ... [more ▼]

Cette étude envisage la qualité de vie (QV) de l’enfant avec antécédents oncologiques et celle de ses parents ainsi que la relation entre l’adaptation parentale et la QV de l’enfant. Deux groupes ont été créés : un groupe expérimental composé d’enfants avec antécédents oncologiques et leurs parents et un groupe contrôle composé d’enfants tout-venant appariés et de leurs parents. Les enfants ont rempli un questionnaire de QV; les parents ont complété des questionnaires évaluant les stratégies de coping, les représentations de la maladie, le stress parental et la QV. Les résultats montrent que la QV du groupe expérimental est satisfaisante et similaire à celle observée au sein du groupe contrôle. Les représentations des parents (menace et contrôle personnel), ainsi que les stratégies qu’ils mettent en place pour maintenir l’intégration familiale sont significativement liées à la QV de leur enfant. Cette étude met en évidence le besoin d’évaluer l’adaptation des parents d’enfant avec antécédents oncologiques et de développer des interventions ciblant leurs représentations et leurs stratégies de coping. [less ▲]

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See detailAutorégulation et qualité de vie en onco-pédiatrie : étude exploratoire
Tilkin, Caroline ULiege

Master's dissertation (2013)

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See detailNew format of the quality of life systemic inventory for children (QLSI-C): preliminary results
Toucheque, Malorie ULiege; Tilkin, Caroline ULiege; Etienne, Anne-Marie ULiege

Poster (2013, July)

Background: This study assesses the test-retest reliability of the QLSI-C iPad version. Methods: Sample consisted of 40 children aged 8 to 12 years which completed QLSI-C twice over a two-week delay ... [more ▼]

Background: This study assesses the test-retest reliability of the QLSI-C iPad version. Methods: Sample consisted of 40 children aged 8 to 12 years which completed QLSI-C twice over a two-week delay. Participants were divided into 3 groups: 13 participants completed iPad (T0) – paper (T1) version, 13 others filled paper (T0) – iPad (T1) and 14 answered iPad (T0) – iPad (T1). Findings: Analysis of variance indicates that group effect (F(2,37) = 1,27, p = 0,29) and time effect (F(2,37) = 0,04, p= 0,84) is not statistically significant nor the interaction effect (F(2,37) = 0,08 p = 0,92). Correlations for the 5 global scores between iPad – iPad version is from .63 to .91 and between the 2 different formats is from .40 to .87. Discussion: QLSI-C test-retest stability and paper – iPad version equivalence are good. This new format is more attractive for children, decreases time for administration and makes easier the encoding. [less ▲]

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